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2026 ALS Featured Marathoner - Phillip Loomer
On any given afternoon, you might find Phil on the sidelines of a volleyball court or in the stands of a gym. His older daughter is on the volleyball team, and his younger one is a gymnast. No matter the venue, Phil is there. He doesn’t miss a game or a meet. Being their dad is the role he holds closest.
Phil grew up in Huntington Beach, California, attending Marina High School. In school, he gravitated toward wood shop and metal shop. At Marina, Phil learned he loved the precision and creativity of working with his hands. Over the years, he worked in construction and a body shop, specializing in car restoration. He is especially proud of his 1972 Gran Torino, which he restored himself; a testament to his patience and craftsmanship. He later became a union carpenter, contributing to various commercial projects, including buildings, malls, and casinos in Las Vegas.
In April 2020, Phil was officially diagnosed with ALS. “It sucks,” he says plainly, his humor dry and honest. He doesn’t sugarcoat the reality of living with a progressive disease. But he also doesn’t let it define the entirety of his life.
When he was first given standard metal canes, he hated them. They felt flimsy and made an annoying sound. So, true to form, he built his own. Phil began crafting beautiful, custom wooden canes that are functional, but also works of art. Some were auctioned off at an event hosted by the ALS Association of Nevada when he was living in Las Vegas. There he was deeply involved with the local ALS community. He helped organize monthly gatherings, bringing people together for support and camaraderie.
Now back in Orange County, living with his parents, Phil reflects on six years with ALS with a mix of realism and gratitude. He knows he’s fortunate to have the time to drive his daughters and their friends to practices, to laugh with them, and show up.
He tries, as he puts it, not to let ALS get in the way of living his life. And in the stands, cheering for his girls, it’s clear: he still builds things that last—memories, community, and love.
By: Cecilia Motherway
